Remember last week's story about the brain surgeon who was AWOL from North Shore University Hospital when he was supposed to be operating on a prepped, anesthetized patient? It gets worse. At least four families are suing Dr. Paolo Bolognese (pictured) and his colleague Thomas Milhorat, who has just stepped down as chairman of the department and, at age 73, will no longer be operating. The plaintiffs in one case are the parents of a five-year-old girl with Chiari malformation, a rare defect where the lower part of the brain descends into the spinal canal, as well as 'tethered cord syndrome." Their lawyers argue that Dr. Bolognese's $100,000 operation to treat the tethered cord "was unnecessary and experimental," and that the girl "was being used as a human research subject." They say she didn't even have tethered cord to begin with, and that the surgery made her problems incredibly worse. Her grandfather tells the Daily News, "These doctors must be stopped. I have cried a thousand tears over her. They must be shut down." A hospital attorney insists that the two surgeons are "expert in this area, and when all the facts come forth, they will be vindicated."





That guy is 73? He must know other surgeons who specialize in . . . you know.
When the lawyers get done with them, they'll be selling Slim Jims at the North Shore Amoco that used to be a hospital once.
These guys are supposed to be the go-to guys for chiari treatment. I actually have chiari and I can tell you, it's painful as hell. I considered going to them since I live in New York, but my neurologist said "I know those guys. I went to school with them. They'll operate on you in a heartbeat." So he recommended me to another guy up at Columbia Presbyterian saying, "This guy is conservative. If he says operate, then you need the operation. Consider the chiari institute as a first opinion. You know they'll say operate."
Chiari is a weird sort of birth defect and those of us with it are looking for reasons why we're so uncomfortable. Some of us are in such poor shape that we can't believe that it's just a little bit of partially descended cerebellum causing all the pain. There must be something else, we think. It can't be just that. The guys at the chiari institute feed into that and they tend to diagnose all sorts of other things at the same time that requires all sorts of extra treatment and it feels right to people because they are in so much pain.
I started to become suspicious of them when I started reading how folks in dire need couldn't get an appointment, couldn't get the proper funding, and couldn't even get through to them after the surgery. My guy took whatever my insurance paid and never even hassled me for a co-payment AND (his weird neurosurgeon personality aside) was very good with follow-up.
Chiari people are desperate and I'll tell you, this will send shock waves through the community. It's too bad. For folks who have this malformation who are in a bad way, there are very few avenues of hope.
my brother had surgery with these drs in 2003. almost a month later he had to be taken off life support. he quaded from the chin down. the minute there was a problem they became drs who? in 2007 a jury found what kind of dr, bolognese really was. if anyone wants to know more about these drs. feel free to contact me. ann.fredlin@yahoo.com